Long-term Outcomes of Children with Myelomeningocele and the Quality of Life in Survivors

Authors : Hatice Mine Çakmak, Ömer Önbaş, Cengiz Tuncer, Kenan Kocabay, Güven Kılıç, Çağatay Zamur, Nadide Melike Sav, Sevim Türay, Büşra Öz, Soner Duru, Fatma Zehra Çevik

Pages : 181-187

Doi:10.18521/ktd.1390461

View : 71 | Download : 68

Publication Date : 2024-06-30

Article Type : Research Paper

Abstract :Objective: Myelomeningocele causes chronic health conditions and diminished quality of life. Therefore, we evaluated the data of 101 children with MMC (myelomeningocele) and aimed to compare the quality of life between children with MMC and their siblings. Children with MMS have a diminished quality of life with social and behavioral aspects and health issues. Method: This retrospective study collected the data from electronic files. KIDSCREEN 10 quality of life instrument was used for measuring the quality of life. Results: Of 101 children, 93 were survivors. Comparing the survivors (n=93) with their siblings, survivors had lower HRQoL (health-related quality of life) scores in subdimensions of physical well-being (p<0.001), relationships with family (p<0.001) and friends (p<0.001), school performance and attention (p<0.001). On the other hand, the psychological wellness score was higher in survivors than in siblings (p<0.001). Most 44 (43.5%) had average mental capacity. The HRQoL score was lower in the Chiari type 2 group than in the other survivors (p=0.035). Serum and folic acid levels did not correlate with HRQoL measures. Conclusions: With new MRI findings, this study reveals the quality-of-life measures in MMC survivors and the Chiari type 2 group.
Keywords : miyelomeningosel, yaşam kalitesi, Chiari tip 2 malformasyonu, manyetik rezonans